Day 37 (14) Wednesday Sept 27

It has been a roller coaster ride today, we talked to Dr who did Carl's last surgery(flap and skin graft )who was very positive about us going home in the next 4-5 days, as the flap is looking good. Care  management was working with insurance to try get ok to go home with the TPN, planning to titrate Carl off the long acting morphine, going over things I would need to manage for Carl at home. His left leg dressing  was removed for the 1st time, we were pleasantly surprised how good it looked, red but healed, no pain!
About 30 minutes after this we meet a partner of colo rectal group, who wanted to check out Carl's GI status. He looked at the stoma and said "where is it" as it very small. He said we have to go back to surgery, try revise this stoma or make a new one. They will have to make an incision along lower rib area, this will be more painful as they will cut muscle. If we would wait the opening would close, the bowel could rupture,causing sepsis ( infection). We cried and are devastated with this next bend in the road.
We were feeling forsaken by God, yet within a couple of hours I felt his gentle reminder " Be still and know that I am God" psalm 46: 10.
Please keep praying, we don't know the time of surgery, but we are an add on again, so likely later in the day or evening tomorrow.
Jody and Carl

Comments

  1. UnknownSeptember 28, 2017 at 6:09 AM

    Oh my. No words. My eyes immediately filled with tears. I cannot understand why this nightmare doesn't seem to have an end to it. From Jesus Calling today, here are parts of one of the verses (Eph. 3:16-18): "I pray that out of His glorious riches He may strengthen you.....I pray that you may grasp how wide and long and high and deep is the love of Christ." Do not feel abandoned even though it must be easy for your minds to go there. You are loved and cared for. ("The eternal God is your refuge, and underneath are the everlasting arms.") You are both being held close by a loving, HEALING Father. I am praying against doubt and despair for you. You have both glorified Him so much during this unbelievably difficult time and He will bless you for that. Hugs and prayers, Patti Philippus

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